Literary picks for week of June 23: Native American words and music are on display this week

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Native American words and music are on display this week, with two programs presented by Indigenous Nations Poets (IN-NA-PO) in partnership with Minnesota Humanities Center, as well as the launch of Minnesotan Teresa Peterson’s book “Perennial Ceremony,” and a program on writing about climate change.

Wednesday, June 26, 5:30 p.m., Minnesota Humanities Center, 987 E. Ivy Ave., St. Paul:

“An Evening of Haiku and Anishinaabe Song” with Kimberly Blaeser, Gordon Henry Jr. and Gerald Vizenor sharing haiku, Anishinaabe dream songs and music as well as conversing with one another and the audience on their work and inspirations. Blaeser is a former Wisconsin poet laureate and founding director of Indigenous Nations Poets, author of six poetry collections. An Anishinaabe activist and environmentalist, she is an enrolled member of White Earth Nation. She is a professor emerita at the University of Wisconsin-Milwaukee and MFA faculty member for Institute of American Indian Arts. Gordon Henry is an Anishinaabe poet and novelist, and an enrolled member of the White Earth Nation of Minnesota. A past professor in the English department at Michigan State University, he also served for many years as senior editor of the American Indian Studies series at Michigan State University Press. Vizenor is professor emeritus of American Studies at the University of California, Berkeley. A citizen of the White Earth Nation in Minnesota, he has published more than 40 books including novels, literary and cultural studies, and poetry and is one of this country’s leading Native scholars and writers. This program includes a complimentary community meal preceding the program. Free, registration required at mnhum.org.

(IN-NA-PO is a national Indigenous poetry community committed to mentoring emerging writers, nurturing the growth of Indigenous poetic practices, and raising the visibility of all Native writers. It recognizes the role of poetry in sustaining tribal sovereignty and Native languages.)

Friday, June 28, 5:30 p.m., Minnesota Humanities Center:

Gwen Westerman (Courtesy of Melanie Zacek)

Nations Poets reading with this year’s IN-NA-PO fellows sharing some of their original work. Hosts will be former Wisconsin poet laureate Kimberly Blaeser, Minneapolis poet laureate Heid Erdrich and Minnesota poet laureate Gwen Nell Westerman. A  community meal included. Free, reservations required. Go to mnhum.org.

Wednesday, June 26, 7 p.m., Birchbark Books event space, 1629 Hennepin Ave., Minneapolis:

Teresa Peterson celebrates publication of her book “Perennial Ceremony” in conversation with Diane Wilson, hosted by Birchbark Books. In this collection of prose, poetry and recipes from University of Minnesota Press, Peterson shares how she found refuge from the struggle to reconcile her Christianity and Dakota spirituality, discovering solace and ceremony in community with the Earth by observing and embracing the cycles of her garden. In this seasonal cycle, we learn how the garden becomes a healing balm, reclaiming and honoring our relationship with Mother Earth. Peterson is Sisseton Wahpeton Dakota and citizen of the Upper Sioux Community. Free.

Tuesday, June 25, 5 p.m., Open Book, 1011 Washington Ave. S., Mpls.:

Diane Wilson (Courtesy photo)

Milkweed Editions reading series presents “Beyond Guilt: Writers Reflect on Climate Change,” hosted by Diane Wilson, author of “The Seed Keeper,” She is executive director of Native American Food Sovereignty Alliance, a Mdewakanton descendant enrolled on the Rosebud reservation. She will be joined by Erin Sharkey and Halee Kirkwood. Sharkey is a writer, arts and abolition cultural worker, and film producer who was awarded the Black Seed Fellowship from Black Visions and the Headwaters Foundation. Kirkwood is a member of Indigenous Nations Poets and direct descendant of Fond du Lac Band of Lake Superior Ojibwe. Free.

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Letters: Gov. Walz’s response to the Feeding Our Future scandal? Feeble

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The governor’s feeble response

Gov. Walz’s feeble response to revelations of the state’s egregiously flawed oversight of the Feeding Our Future program was extremely disappointing.

Addressing the scathing criticism by the Legislative Auditor of his administration’s “actions and inactions” contributing to the massive $250 million fraud, the governor accepted responsibility but then shifted the blame to COVID and other features.

His declaration that “We can always do better” sounds more like a political campaign slogan than any real contrition or resolve to impose discipline or other corrective action to sanction the responsible parties, besides himself, and prevent any semblance of recurrence.

Marshall H. Tanick, Minneapolis

 

‘His mission for Jayson’

Sainted: Mary Divine for interviewing us and featuring our story in Sunday’s Pioneer Press (“His mission for Jayson,” June 16). This was such a good and needed experience for us. Mary brought a lot out of us that we haven’t really shared in the past.

We believe that through her article, many parents and grandparents will talk to our youth. We feel that the parents are scared of this epidemic and honestly, to some degree, they should be. We just want them to get past the “it couldn’t happen to us” for whatever reason they come up with. If they can get past that, they will at least keep a watchful eye on their loved ones.

We think Mary’s article will have all who read it thinking twice. The Pioneer Press has done a great thing in publishing it. Thank you, Mary, for bringing back the hidden memories, good and bad for us. We needed that.  Also, you are true professional and a kind-hearted person. We are sure that Jayson thanks you as well.

Jay and Vickie Pernu, Lake Elmo

 

Why is it so difficult to get the Twins back on TV?

My mother is 97 years old, and has been a devoted Twins fan for many years. She lives in a senior living community now where streaming services are not available, and her one enjoyment was watching the Twins on TV. She wouldn’t miss a game.

Now that the games are not available any longer, it has left a huge void in her life. I wonder how many other seniors are missing the games, just like her. This is a special group of people in our community who have stood behind the team for years and are now being let down because of bickering over money.

Why is it so difficult to figure out how to get baseball back on TV for these special fans? My mother is waiting.  Don’t continue to let her and all the rest of us down.

Andrea Wheeler, Maplewood

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Literary calendar for week of June 23

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TRACY CHEVALIER: Bestselling author brings her new novel, “The Glassmaker,” to Talk of the Stacks presented by Friends of the Hennepin County Library. Chevalier, who loves Venice and wanted to get to know it better, discovered that glass has been made for centuries on Murano, an island just off the coast of Venice where for a long time beads were the only glass objects women could make, so she focuses on a fictional woman and her glassmaking family. The story moves from Renaissance-era Italy to the present day. Chevalier has written 11 novels, including “Girl With a Pearl Earring.” 6:30 p.m. Thursday, June 27, Minneapolis Central Library, 300 Nicollet Mall, Mpls. Free. In-person tickets are all taken; sign up for Zoom access at info.supporthclib.org.

DAVID HOUSEWRIGHT: Award-winning Minnesotan reads from “Man in the Water,” latest in his series featuring unofficial P.I. Rushmore “Mac” McKenzie, whose wife finds a body half in the water, frozen to a ladder at a marina on the St. Croix River. 6 p.m. Tuesday, June 25, Next Chapter Booksellers, 38 S. Snelling Ave., St. Paul.

JOSEPH KUEFLER: Minnesota author/illustrator hosts a story time celebrating “The Digger and the Dark,” fourth in his popular Digger series. In this one Digger and the other big trucks, including Crane and Sweeps, are ready to tuck themselves into bed but two wide-awake, mischievous raccoons have other ideas. 10:30 a.m. Saturday, June 29, Red Balloon Bookshop, 891 Grand Ave., St. Paul.

PATRICK NATHAN: Minnesotan discusses his new novel, “The Future Was Color,” about a Hungarian immigrant working as a studio hack in post-World War II Hollywood, navigating the McCarthy-era studio system and living the life of closeted men along Sunset Boulevard. When his friend, a famous actress, offers him a writing residency at her Malibu estate, his world is blown open. This will be a live radio interview with Josh Weber, host of Write On Radio. 6 p.m. doors open; 7 p.m. program. Tuesday, June 25, Gray Duck Tavern, 345 N. Wabasha St., St. Paul, presented by SubText Books.

POETRY AND JAZZ: Fourth annual Poetry and Jazz in the Holy Ground featuring the jazz duo of Larry McDonough and Richard Terrill, as well as the launch of the poetry chapbook “The Nations Underground: Writing With Our Ancestors” with more than a dozen area poets reading from the book along with featured poets Margaret Hasse, Patrick Cabello Hansel and Dralandra Larkins. Hands-on lantern-making workshop led by local artists from the Semilla Center for Healing and the Arts. Presented by the Semilla Center and Not Dead Yet Poets Society. Free. 2 p.m. Saturday, June 29, Pioneers and Soldiers Cemetery, 2945 Cedar Ave., Mpls.

GABRIELLE ZEVIN: Celebrates publication of the paperback edition of her novel “Tomorrow, and Tomorrow, and Tomorrow,” which sold more than a million copies since the widely praised hardcover was published two years ago. It’s the story of three young people who meet as college students and design popular video games that bring them fame, joy and tragedy in the next 30 years. In conversation with Minnesotan Antonia Angress, author of “Sirens & Muses.” 7 p.m. Friday, June 28, Parkway Theater, 4814 Chicago Ave., Mpls., presented by Magers & Quinn. $27-$37. Ticket information at theparkwaytheater.com/all-events/gabrielle-zevin.

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Joe Grogan: Access to new Alzheimer’s treatments bogged down by Medicare policy

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Alzheimer’s is a progressive, fatal disease that boggled scientists for a century.

In the past 30 years, $42 billion has been invested in research and development of drugs that could treat it. More than 150 trials ended in failure.

Now, at last, we have two treatments with significant clinical benefit — one, lecanemab, approved by the Food and Drug Administration and another, donanemab, recently endorsed by its advisory panel — and a scientific pathway that could one day point the way toward a cure.

Unfortunately, it’s not clear how quickly patients and their families will be able to benefit. It could be months before the FDA approves donanemab. These drugs work best at early stages of this progressive disease. Patients who could see results from treatment today may not be eligible tomorrow. Our agencies must refocus their efforts on ensuring safe, appropriate access for people who may benefit from the first new treatments for Alzheimer’s in three decades.

Eisai’s Leqembi (lecanemab) received FDA approval more than a year ago after demonstrating a 27% decline in early disease progression; donanemab achieved 35%.

But rather than cover the drug for seniors who need it, the Centers for Medicare and Medicaid Services (CMS), which administers Medicare, restricted access, citing the very safety concerns the FDA scrutinized before granting approval.

The result? After more than a year on the market, the drug has reached only 5,000 patients.

Though the FDA reviewed the data and determined lecanemab’s benefit outweighed the risks, CMS continues to press for more data on its clinical benefit and safety.

The agency isn’t supposed to consider cost in a coverage decision, but that certainly seems to be a factor. It effectuated one of the largest premium increases in the history of the Medicare program to manage the projected budget impact of a similar Alzehimer’s drug, Aduhelm — then restricted access to it and rebalanced premiums.

The tool used to nullify these drugs is “coverage with evidence development,” or CED. This program was designed to speed new technologies to market, protect patients and spur innovation. But CMS has warped its purpose, using CED to impede access not only to Alzheimer’s treatments but to diagnostic too.

PET scans are the gold standard for diagnosing Alzheimer’s by confirming the presence of amyloid plaque in the brain. A second test is used after treatment to confirm that plaques have been removed. After tying up these tests in CED for more than a decade, CMS finally concluded last October what we’ve known for years: that the preponderance of data supports using PET scans to diagnose Alzheimer’s disease.

Now we must ensure equitable access to these tools in practice. The new drugs deliver the most benefit when administered early in the progression of disease, so getting a timely, accurate diagnosis is crucial.

Yet even where a patient can get access to the drug under CED, the process is burdensome for physicians, who must enter patient data in an approved registry or study to secure Medicare coverage.

This adds an uncompensated layer of bureaucracy to the management of a disease that is already very complex to diagnose and treat. CMS maintains that its digital database is easy to use, but the policy is disconnected from the reality on the ground.

Neurologists’ offices are packed trying to manage the demands of an aging population. Appointments can be backed up for more than a year. Memory centers at elite medical institutions can train staff to navigate these additional tasks, but remote facilities are struggling. The result is that fewer patients have ready access to the treatment.

Donanemab faces all the same headwinds. Let’s hope a swift FDA approval is followed by a new CMS policy that helps ensure people who need these treatments can get them.

Joe Grogan is a senior fellow at the University of Southern California’s Schaeffer Center for Health Policy & Economics and former director of the Domestic Policy Council in the White House. Grogan consults for the health care industry, including those working to develop treatments for Alzheimer’s disease. He wrote this column for the Chicago Tribune.

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